Beyond Lupus

Lupus empowerment starts here.

NMQF’s Lupus Empowerment Toolkit offers eight culturally tailored resources to help individuals—especially in Black communities—understand, manage, and advocate for their health. From recognizing early symptoms and navigating clinical trials to understanding fertility risks and family history, each guide is designed to break down complex information and support informed decision-making at every stage of the lupus journey.

By expanding knowledge of the disease and increasing participation in clinical trials, we can move beyond managing lupus—and start unlocking the mystery behind it.

Learn More About Clinical Trials

If you are considering participating in a lupus clinical trial—or simply want to better understand how clinical trials work—our Clinical Trial Education Toolkit can help.

The toolkit was created to provide clear, accessible information about the clinical trial process so patients and families can make informed decisions about their care.

When you visit the toolkit page, you will find resources that explain:

How clinical trials work from start to finish
What informed consent means and what to expect before joining a study
Questions you may want to ask your doctor or the research team
Your rights as a clinical trial participant
How clinical trials help improve treatments for lupus and other conditions

These resources are designed to help patients, caregivers, and families feel more confident when learning about research opportunities.