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Beyond Lupus Banner

Lupus empowerment starts here.

NMQF’s Lupus Empowerment Toolkit offers eight culturally tailored resources to help individuals—especially in Black communities—understand, manage, and advocate for their health. From recognizing early symptoms and navigating clinical trials to understanding fertility risks and family history, each guide is designed to break down complex information and support informed decision-making at every stage of the lupus journey.
 
By expanding knowledge of the disease and increasing participation in clinical trials, we can move beyond managing lupus—and start unlocking the mystery behind it. 

Want to learn more about participating in a lupus clinical trial?

If you are considering participating in a lupus clinical trial—or simply want to better understand how clinical trials work—our Clinical Trial Education Toolkit can help.

The toolkit was created to provide clear, accessible information about the clinical trial process so patients and families can make informed decisions about their care.

When you visit the toolkit page, you will find resources that explain:

  • How clinical trials work from start to finish
  • What informed consent means and what to expect before joining a study
  • Questions you may want to ask your doctor or the research team
  • Your rights as a clinical trial participant
  • How clinical trials help improve treatments for lupus and other conditions

These resources are designed to help patients, caregivers, and families feel more confident when learning about research opportunities.

Education Toolkit
After Diagnosis Navigation Toolkit

This toolkit aims to help individuals living with lupus manage their condition after diagnosis, including keeping up with doctors' appointment, tracking medications, and making lifestyle adjustments.

 

 

Empower and Thrive: Your Lupus Journey Guide

This guide is a resource for individuals living with lupus, offering practical advice, tools, and encouragement to help you manage your symptoms, advocate for yourself, and lead a confident, fulfilling life.

 

 

Spotting the Signs: Lupus Symptoms in Black Individuals

This resource highlights the unique signs and symptoms of lupus in Black individuals, offering insights to aid early recognition and prompt care.

 

 

Lupus and Family Ties: Understanding Genetics

This guide provides practical tools and support to help individuals with lupus understand hereditary factors and genetic risks.

 

 

Lupus & Fertility: A Guide for Black Families

This guide aims to help patients understand how lupus and its treatments may impact fertility, pregnancy, and overall reproductive health.

 

 

A Guide to Discussing Lupus Clinical Trials With Your Doctor

This guide helps people living with lupus feel more confident and prepared to talk with their doctor about clinical trials, including understanding how they work, what to ask, and how to decide if participation is right for them.

 

 

What You Should Know About Clinical Trials

This resource gives a comprehensive overview of clinical trial participation, patient rights, and a snapshot of successful trials that have advanced care for Black populations.

 

 

Lupus: What We Know and What's Next

This guide explores the current understanding of lupus, its challenges, and the critical need for more Black recruitment in research and clinical trials.

 

 

Share Your Story With Us!

Your story could help another person with lupus feel seen, understood, and empowered—share your journey with us and help bring more awareness, support, and representation to the lupus community.
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