An educational resource for lupus patients, caregivers, and advocates — empowering Black communities to engage with clinical research and shape the future of lupus care.
⬇ Download the Lupus Clinical Trial FlyerUnderstanding the stakes — and the opportunity — for our communities.
Lupus affects Black communities at higher rates than many other groups. Black women are two to three times more likely to develop lupus, and often experience more severe symptoms and complications. Yet historically, Black patients have been underrepresented in clinical research.
Clinical trials help doctors and researchers better understand lupus and develop treatments that work for everyone. When Black patients are included in research, it helps ensure that new medicines and care approaches are safe, effective, and responsive to the needs of our communities.
Your participation can help move lupus research forward and ensure that future treatments reflect the experiences of the people most affected by the disease.
Black women are 2–3× more likely to develop lupus and often experience more severe symptoms and complications.
Historically, Black patients have been underrepresented in clinical research, limiting our understanding of how lupus affects diverse communities.
Inclusive research ensures new medicines and care approaches are safe and effective for the communities most affected by lupus.
A clinical trial is a research study that helps scientists learn more about lupus and test new treatments, medications, or ways to manage symptoms. Some trials study new drugs, while others explore better ways to diagnose lupus earlier or improve quality of life for people living with the condition.
Clinical trials are an important part of how medical breakthroughs happen.
Every study is different, but most lupus clinical trials follow a similar process.
You and your healthcare provider review available studies to see if any match your medical history, symptoms, and eligibility.
Before joining, researchers explain the purpose of the trial, what participation involves, possible risks and benefits, and your rights as a participant.
Participants may receive a new treatment being studied, standard treatment, or a comparison treatment. The research team monitors your health and progress throughout the study.
Participants may attend scheduled visits, lab tests, or follow-up appointments so researchers can track how the treatment is working.
Many Black communities have understandable concerns about medical research due to past injustices in the healthcare system. Today, clinical trials operate under strict protections to ensure participant safety, transparency, and respect.
When clinical trials include people from diverse backgrounds, researchers gain better insight into how treatments work across different populations. Your voice and experiences can help shape the future of lupus care.
More effective treatments for lupus
Better understanding of how lupus affects Black patients
More equitable health outcomes
Improved care for future generations
Our live database pulls directly from ClinicalTrials.gov to help patients, caregivers, and healthcare providers find lupus studies that may be a good fit.
Answers to common questions about lupus clinical trials.
If you have lupus and are interested in learning more about clinical trial opportunities, complete the form below and our team will be in touch.
.png)
