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Talk to Your Healthcare Provider About ATTR-CM

Could It Be More Than Heart Failure?

If you’ve been diagnosed with heart failure but still feel something isn’t right, you’re not alone. Get to the heart of the matter and ask your healthcare provider about ATTR-CM.

 

What Is ATTR-CM?

Understanding ATTR-Cardiac Amyloidosis (ATTR-CM)

ATTR-CM is a rare form of heart failure caused by the buildup of proteins in the heart, making it stiff and less able to pump blood. It comes in two forms—hereditary (hATTR-CM) and age-related (wtATTR-CM)—and it’s often overlooked.

V122i is a gene change that can cause ATTR-CM. It is one of the most common gene variants in the U.S.  It's important to note that any ethnicity can develop wtATTR-CM with aging. Early diagnosis can make all the difference in managing symptoms and improving outcomes. 

 

For ATTR-CM related pronunciations, scroll to the bottom of this page.

DID YOU KNOW?

Black Americans estimated to carry the V122i mutation

Approximate number of new ATTR-CM cases diagnosed each year

yrs

The approximate amount of years it takes most people to get a diagnosis

Firefly_Doctor and patient speaking or warm, relatable photo of an older adult. AFRICAN AMERI 546437

ATTR-CM Fast Facts

  • Shortness of breath, fatigue, swollen ankles, legs, or feet, carpal tunnel in one or both hands, biceps tendon rupture, and irregular heart beat are some of the most common symptoms.
  • Wild-type ATTR-CM symptoms usually begin after the age of 60.
  •  1 in 25 Black Americans carry a gene that increases their risk of ATTR-CM. 
  • Hereditary ATTR-CM, or hATTR-CM patients are primarily older Black males.
  • Carrying the V122i variant does not guarantee that you will get ATTR-CM.
  • If left untreated, ATTR-CM can lead to heart failure or death.
  • There is no cure for ATTR-CM, but treatment is available to slow the progression.
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Resources

Symptom Tracker & Bodymap Guide

Still not feeling right? Use this simple visual tracker to mark your symptoms, prepare for your next doctor visit, and advocate for the answers you deserve.

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RESOURCES

ATTR-CM Terminology Fact Sheet

Confused by the terms? This quick-reference glossary breaks down key ATTR-CM medical terms in plain language so you can feel confident during appointments.

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Resources

Social Media Toolkit

Use this social media toolkit to raise awareness about ATTR-CM. By using social media, you can educate communities, encourage earlier diagnosis, and support those affected by this rare but serious disease.

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ATTR-CM Pronunciation Guide

Amyloidosis
a · muh · loy · dow · suhs
0:01
Cardiomyopathy
kaar · dee · ow · mai · aa · puh · thee
0:01
Echocardiogram
eh · kow · kaar · dee · uh · gram
0:01
Hereditary
hr · eh · duh · teh · ree
0:01
Scintigraphy
sin · ti · gruh · fee
0:01
Transthyretin
tranz · thai · ruh · tn
0:01

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